Having a diagnosis of penile cancer can be very daunting for patients and their relatives as many people will never have heard of the disease. There is very little information available to patients – here are some reliable and useful sources of information and support for penile cancer patients.
- The Christie psycho-oncology service
Our experienced team offers in-depth assessments and specialist support to help with issues like severe anxiety, major depression or significant trauma. We work closely with cancer teams to make sure emotional wellbeing is recognised and supported as an important part of overall care. - The Christie and Maggie’s Penile Cancer Patient Group
Face-to-face educational group for patients, partners and relatives run every 3rd month on a Wednesday at Maggie’s. Advertised on Facebook and through clinics. - ORCHID Facebook group
Raising awareness of this rare cancer, we invite those with penile cancer to participate and share their personal experience and journey. The aim is to get this rare and often untreated cancers into the open and raise awareness. - Maggie’s Centre
Maggie’s Centres offer free practical, emotional, and psychological support for anyone affected by cancer, including men with penile cancer and their families.
- Christie penile cancer information leaflets: Series of information leaflets regarding procedures specific to our service.
- BAUS Patient Information Leaflets: British Association of Urological Surgeons patient information leaflets related to penile cancer.
- EAU Patient Information Penis Cancer: European Association of Urologists patient information website.
- The ORCHID Charity Penile Cancer Hub: The ORCHID penile cancer hub is an online information website created for men and their families. It provides clear, reliable advice about symptoms, treatment, and living with penile cancer.
- eUROGEN Rare Uro-Recto-Genital Diseases and Complex Conditions: Provides patient-friendly information and access to specialist European centres for rare and complex urogenital conditions.
- Cancer Research UK (CRUK) penile cancer information: Explains penile cancer in clear language, covering symptoms, tests, treatments, and emotional support for patients.
- The Urology Foundation (TUF) cancer of the penis information: Offers easy-to-understand guides about penile cancer, treatment options, and research supported by the charity.
- NHS England penile cancer information: Practical advice on diagnosis, treatment, side effects, and living with penile cancer.
- Penile cancer podcast interview with Christie consultant urologist Mr Arie Parnham
- EAU/ASCO Penile Cancer Guidelines: International clinical guidelines that outline recommended standards of care, with summaries to help patients understand treatment choices.
- ESMO Penile Cancer Guidelines: European expert guidance presenting evidence-based information on the best approaches to managing and treating penile cancer.