Patient and public involvement for Christie Patient Centred Research

The Christie Patient Centred Research (CPCR) Patient and Public Involvement and Engagement (PPIE) group is made up of people who have been affected by cancer and advises the CPCR team on their research studies. This can include providing feedback on our study designs to ensure a positive experience for participants and making sure we are focusing on the questions that really matter to people.

The feedback we gather in the CPCR PPIE meetings is extremely valuable to our research, and has enabled our team to make positive changes to our research studies, and even identify new ideas.

The group meets every 6 weeks (usually online), where different speakers will come to present a research study or idea for members of the group to provide feedback. Members are not obliged to attend every meeting and can provide feedback in person or by email if this is preferred.

Some of our members, and other people who have been affected by cancer, can become part of our research study groups. Involvement in a research study may include attendance at meetings to ensure that patient voices are represented in the running of the study. The level of involvement will differ between studies but on average should only take an hour or 2 of your time each month for the duration of the study.

If you are interested in joining the CPCR PPIE group, please email the-christie.cpcr@nhs.net for more information.

David Makin is a former patient and a partner governor at The Christie. He's bringing his own experience of cancer to our patient-centred research.

Julie was a patient at The Christie in 2007 when she was first treated for breast cancer. During this time, she was very keen to share her views and experiences, so Julie is now very pleased and proud to be a representative for The Christie's patient-centred research.

“Research means we are now living longer or being cured, but you are never out of the woods. Many people are changed forever by cancer. By doing this research we can help people to live with the after-effects of surgery or treatment.

Isobel has non-small cell lung cancer. She's been undergoing treatment at The Christie for the past 12 months. She's keen to get involved with our patient-centred research to make care for patients even better.